Before reading my story, please remember that this is my cancer story. It will not be your cancer story, and you may have different outcomes than I have. Please don’t allow my experience to discourage you.

Cancer happened to me on Thursday, June 16, 2022, at 12:30 in the morning. I got up to go to the bathroom and suddenly began bleeding heavily. I knew something was very wrong. I woke Richard, got ready as quickly as I could, and we went to the hospital. At first, the doctor tried to tell me it was because of my age and that my periods might become heavier. I tried to explain that I was not on my period and that this was not normal for me. While at the hospital, the bleeding continued. At one point, I passed out while walking back to my bed, and Richard had to carry me. That was when the doctor said, “Now you have my attention.”

I had lost a significant amount of blood and needed two blood transfusions. My hemoglobin dropped to five. For reference, blood transfusions are often considered when hemoglobin levels fall below certain levels, depending on the patient and their situation. The doctors performed ultrasounds and surgery to try to determine what was happening. They found fibroids in my uterus and needed to perform several biopsies. They also tried to perform a Pap smear, but because of the bleeding, it was difficult for them to see my cervix. During surgery, they performed a D&C on my uterus and took biopsies from my uterus, cervix, and the fibroids. I also needed another blood transfusion during surgery. A few hours after surgery, my hemoglobin had improved to 9.5, and I was able to go home.

From there, my cancer journey continued. I underwent chemotherapy, radiation, and internal radiation.

In December 2023, my cancer had spread to my lungs. We began chemotherapy and immunotherapy.

In April 2024, I received high-dose radiation for two spots in my lungs.

In September 2025, I started immunotherapy again. Unfortunately, it caused serious problems with my lungs and pancreas, and I had to stop after three rounds.

In November 2025, I started chemotherapy again.

My oncologist at The Ohio State University first told me about the Facebook group for women with this rare cancer. I joined the group, but at first, I had to leave. Dealing with a cancer diagnosis for the first time was overwhelming. Reading about other people’s difficult experiences sometimes made it even harder for me. A couple of years later, when I was going through treatment again, I rejoined the group. This time, I became much more involved. It has been very helpful to have people I can ask questions and talk to. Hearing about their experiences and learning what they have been through has helped me feel more informed and less alone.

I have attended the annual gathering twice, and honestly, that has helped me the most. Especially the second time. I remembered many of the women from the year before, and I felt like we connected on a much deeper level. It truly felt like they were on my side. During the second gathering, I was in the middle of chemotherapy. Being with these women was incredibly helpful and encouraging. There is something special about being surrounded by people who understand.

I have a much more detailed account of my story, including the chemotherapy and immunotherapy treatments I have received, as well as the short- and long-term side effects I have experienced.

I am an open book.

If you would like to know more about my journey, just ask. 🩵