Our letter to the woman just diagnosed
There are some moments in life that no one can ever prepare you for.
One of those moments is receiving a call from your doctor saying, "You have cervical cancer." Then comes the sentence that changes everything:
"It's not just any type of cervical cancer. It's a rare and aggressive form called Small Cell Neuroendocrine Cervical Cancer (SCNECC) or Large Cell Neuroendocrine Cervical Cancer (LCNECC)."
Sometimes your doctor has cared for a few women with this diagnosis over the course of their career. Sometimes, you're their very first patient.
Either way, the questions come flooding in.
How did this happen to me?
Am I going to survive?
What treatment will I need?
Will I lose my hair?
How do I tell my family?
If you're asking yourself any of these questions, we want you to know something first:
We've been there.
We know how terrifying those first hours and days can feel. We know what it's like to search for answers when there don't seem to be many. We know the fear that comes with hearing the words rare and aggressive.
And we also want you to know this:
You did nothing to cause this. This is not your fault.
Most importantly, you are not alone anymore.
We're so glad you found us.
When many of us were first diagnosed, we found our way to a private Facebook community of women living with this disease. What started as a place to ask questions quickly became so much more. It became a lifeline. It was where we found answers, celebrated victories, mourned heartbreaking losses, and discovered the comfort of talking to people who truly understood.
That community became the foundation we're honored to build upon today.
Many of those same women helped create Sorority of Hope, an annual gathering that brings together survivors, supporters, caregivers, advocates, and families from around the world. When we attended our first gathering, something became crystal clear: while online communities can connect us, there is something profoundly healing about sitting across from another woman, sharing a hug, hearing her story, and realizing you don't have to explain your fears because she already understands.
Those moments of connection simply can't be replaced in the digital world.
That's why one of our deepest commitments is to help sustain and grow gatherings like Sorority of Hope through fundraising and community support, so that every woman who receives this diagnosis has the opportunity to experience the same sense of belonging, encouragement, and hope that so many of us have found.
Lifted Through Hope was created because every one of us wished this community had existed when we were first diagnosed. We needed someone who understood, not just the medical side of this disease, but the emotional side too. Someone who knew what scanxiety feels like. Someone who understood the waiting, the uncertainty, and the hope we hold onto between appointments.
We didn't start this sisterhood. We were welcomed into it. Now we're committed to making sure every woman who comes after us finds the same embrace.
Within these pages, you'll meet women who have walked this road before you. You'll find stories from survivors, caregivers, advocates, and families who continue to honor loved ones lost to this disease. You'll discover educational resources, emerging research, and information to help you become your own best advocate as you navigate treatment and recovery.
But more than anything else, you'll find people.
Real women. Real conversations. Real hope.
Someone to celebrate your victories with. Someone to sit with you through the hard days. Someone who understands without needing an explanation.
Because while this cancer may be rare, you are not rare to us.
One of our doctors once shared something that has stayed with many of us:
"Each treatment we try is like adding a drop of water to a bucket. We don't stop adding drops until there's no room for another."
We love that reminder because hope isn't found in one single drop. It's found in continuing to move forward; one treatment, one conversation, one breakthrough, and one day at a time.
From this moment forward, we hope you know that you have a community standing beside you. We can't promise the road ahead will be easy, but we can promise you this:
You don't have to walk it alone.
Love,
Jen, Malee, Lynette, and Jezebel
Hope, Healing, Community
A private Facebook community created by Sisters for Sisters exclusively for women diagnosed with Small Cell and/or Large Cell Cervical Cancer. Connect with women who understand, ask questions, share experiences, and find support.
You are not alone. You are not rare to us.
Small Cell Cervical Cancer and Large Cell Cervical Cancer Support! Cancer Comrades uniting to make a difference! This sisterhood is made up of sisters and their families putting a face and a voice to Neuroendocrine Small Cell Cervical Cancer and Large Cell Cervical Cancer.
Since this cancer is so rare, it is difficult to collect enough information at any single institution to provide meaningful results. The purpose of this registry is to obtain information about diagnosis, stage, treatment, and survival of women with this disease.
The non-profit organization SARCC (Sisters Against Rare Cervical Cancers) distributes comfort blankets to women in treatment.
Gloria, the visionary founder of Return to Wholeness, is passionate about empowering individuals to reclaim their lives and thrive beyond their illnesses. As a certified life coach, she brings a wealth of knowledge, experience, and compassion to her work.
Stay in touch.
Tell us where you are in this journey. A real person reads every message, and we will reply as soon as we can.